Having 22q deletion syndrome has brought on a ton of challenges in my life. It is really hard to manage at times. Lately, I have been wondering why do i have to go through so many struggles?
When I was young I threw up every morning til high school. During high school I was sick and in bed most of the time and lost 15 pounds in a month and wasn't able to eat much.
Now in my late 20's life is taking that turn again. Around Christmas time I got really sick again. Threw up a lot and lost weight. The normal route for me is when I wake up I feel nauseous and sick until like late afternoon. It's a battle everyday.
I got so sick a few months ago I had to go to the doctors and after that had to go to the ER because the doc thought it might have something to do with my kidney. Scans were ran. All came out normal it was just my regular stomach stuff that i would rather not say on here.
But because I keep getting sick like this, I feel like my body keeps losing or gaining weight.
22q is different in everybody. It can be visible or invisible (Invisible making all that much harder. It is said 22q hits people in 180 different ways. Honestly, if I'm being honest even though I seem cheery all the time and smiling behind the scenes is a hard life with lots of challenges I have to face everyday. But I guess I wouldn't trade it because it's turning me into the person God intended me to be.
I get frustrated sometimes when no ones around, cry sometimes, ask God " why is all this happening to me?" Because feeling sick all the time is not how a person should live. It's not how I want to live. But I have faith in God that I will be totally healed one day
Here's a verse I want to share
"Consider it pure joy, my brothers and sisters
Whenever you face trials of many kinds. Because you know that the testing of your faith produces perseverance
Let perseverance finish its work so that you may be mature and complete not lacking anything" James 1:2-4
Remember, God will reward those who push through life and do what He has called us to do. Even if life is super hard at times and God will give us the strength to get through this life
Hey Meghan! Thanks for the blog post and for your videos. My sister-in-law has 22q. Her name is Shannon, and she is amazing. I have been looking around trying to learn ways to help her live her best life (her anxiety can be bad at times too) and found a couple of your videos. You are truly an inspiration!! Seeing that you were attending a class, had enjoyed working a couple shifts, and spent time with friends and with your faith was amazing to see! Keep up the great work, you are making a difference!